Resources

Helpful Websites

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National Organizations

National Down Syndrome Congress

National Down Syndrome Society

National Association for Down Syndrome

International Mosaic Down Syndrome Association

Other Resources

DSAC Support Page (Bulletin Board)

Shopping for Adult Vocational Services

Emma's Gifts

Adaptive Scouting Programs  in Mecklenburg County (Boy Scouts- Girl Scouts)

Down Syndrome: WWW Page

Riverbend Down Syndrome Parent Support Group

Down Syndrome Information Network

Sara G’s “Being Into Down Syndrome”

Uno Mas! (Temecula Valley DS Group

Downscity Homepage

Special Olympics of North Carolina

 

Magazines and Newsletters

Down Syndrome Quarterly (a multi-disciplinary journal)

Disability Solutions

Down Syndrome Amongst Us


Medical Resources


Medical Descriptions of DS
A description of Down Syndrome characteristics
by Dr. Siegfried M. Pueschel

NDSS Health Guidlines

Health Care Guidelines for People with DS

Spanish Edition of DSMIG Guidelines

Down Syndrome: Health Issues, from Dr. Len Leshin

Dr. Korenberg’s Chromosome 21 Phenotype Mapping Project

Online Mendelian Inheritance in Man (OMIM)
Gene Map of chromosome 21

Risk and Recurrence of Down Syndrome
by Dr. Paul Benke

What is Mosaic Down Syndrome? by Carol Strom

Animations of Meiosis and Fertilization

Center for Motor Behavior in Down Syndrome


Dental Care in Down Syndrome:
A Review of the Literature by Sindoor Desai, DDS

Down Syndrome & Autistic-Spectrum Disorder

Down’s Heart Group

Growth Charts for Children with Down Syndrome

Menstrual Management in Down Syndrome

Hip Instability in Down Syndrome by Kim Voss

Alzheimer’s in DS by Dr. Ira Lott

My Brother and Me: about Down Syndrome and Alzheimer’s


Other Resources for Parents

www.abctutoring.com - Charlotte - Language Stimulation School

Breastfeeding and Down Syndrome,
by the La Leche organization

Communicating Partners, Dr. James McDonald’s program

Diagnosis: Down Syndrome (a collection of stories
for new parents of children with DS)

Down Syndrome - For New Parents
by The Paul Family

 

Love and Learn Tapes for Teaching Reading

National Down Syndrome Education and Research Institute

Parents’ Resource - For new parents
(by the Edwards Family)

http://www.thinkcollege.net/  College opportunities

Welcome to Holland
by Emily P. Kingsley

Welcoming New Babies
by Pam Wilson

For Your Enjoyment

Artists

Chris Burke Fan Club Website

Sujeet Desai: Pianist Extraordinaire

Michael Jurogue Johnson: a painter and illustrator with DS

Raymond Hu’s Website: his story and paintings

Erik David Behnke: An Alaskan Artist


Jane Cameron, Sunshine Girl

“Beautiful Faces” Calendars and Note Cards

Sign Language Rebus Books for Children with Special Needs

TLC Kids Company: educational materials for children with disabilties

Special Fit Online: Clothes for adults with DS

Time2Read is educational Internet software

Regional Organizations

Southeast

The ARC of Mecklenburg County

ARC Broward

Charlotte-Mecklenburg Schools Exceptional Children

Charlotte-Mecklenburg Schools Preschool Exceptional Children (english)   (spanish

DS Association of Atlanta

Down Syndrome Association of Charlotte, NC

Down Syndrome Assoc.of Middle Tennessee

Down Syndrome Assoc. of New Orleans

DS Broward.org

DS Family and Friends (Little Rock, AR)

Down Syndrome of Louisville, KY

The Exceptional Children's Assitance Center

Family Network on Disabilities of Florida, Inc.

Gold Coast Org. of Palm Beach County, FL

Hope Haven Children’s Clinic and Family Center

Lindsey Rae Foundation (Broward)

Parents of Children with DS (PODS) of N. Virginia

Piedmont DS Support Network (N Carolina)

PODS Angels Support Group Foundation, Inc.

Stewart Home School (Kentucky)

Triangle Down Syndrome Network (N Carolina)

Up With Downs (Shreveport, LA)


Northeast

Aim High! (Albany, NY)

Bringing Up Down Syndrome (Southern NJ)

Connecticut Down Syndrome Congress

Down Syndrome Parent Network (E. Penn)

Down Syndrome Support of Genesee County (NY)

Down Syndrome Society of Rhode Island

Massachusetts DS Congress

Trisomy 21 of Northern New York


Central

Down Syndrome Assoc. of Central Ohio

Down Syndrome Assoc. of Central Oklahoma

Down Syndrome Development Counsel (N. Illinois)

Down Syndrome Assoc. of Greater Cincinnati

Down Syndrome Assoc. of Minnesota

Down Syndrome Assoc. of West Michigan

Down Syndrome Assoc. of Wisconsin

F.E.D.S. (Sterling Heights, Mich)

Indiana DS Foundation (Indianapolis)

Miami Valley Down Syndrome Assoc. (Dayton, OH)

Oshkosh Down Syndrome Parent Support Group

Riverbend DS Parent Support Group (SW Illinois)

The Up Side of Downs of Greater Cleveland

Up With Down (Des Moines)

Wichita Downs Support Group


West

Down Syndrome Assoc. of Houston

Down Syndrome Assoc. of Los Angeles

Down Syndrome Connection of Tucson

Down Syndrome Exchange, Southern CA

Down Syndrome Guild of Dallas

Down Syndrome League of the Greater Bay Area

DS Network (Phoenix, AZ)

Down Syndrome Organization of Southern Nevada

Syndrome Partnership of Tarrant County (Ft. Worth)

Down Syndrome Support Group of the High Desert

Down Syndrome Assoc of Ventura County (CA)

PROUD (Orange County, Cal.)

Sharing Down Syndrome Arizona


Rocky Mountain/Northwest

Colorado Springs Down Syndrome Assoc.

Down Syndrome Outreach of Whatcom County (WA)

Mile High Down Syndrome Assoc. (Denver area)

Upside! (Wash.)

Utah Down Syndrome Foundation

Alaska

 
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