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Contact
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to suggest additional links/information or report errors
National Organizations
National Down Syndrome Congress
National Down Syndrome Society
National Association for Down Syndrome
International Mosaic Down Syndrome Association
Other Resources
DSAC Support Page (Bulletin Board)
Shopping for Adult Vocational Services
Emma's Gifts
Adaptive Scouting Programs in Mecklenburg County (Boy Scouts- Girl Scouts)
Down Syndrome: WWW Page
Riverbend Down Syndrome Parent Support Group
Down Syndrome Information Network
Sara G’s “Being Into Down Syndrome”
Uno Mas! (Temecula Valley DS Group
Downscity Homepage
Special Olympics of North Carolina
Magazines and Newsletters
Down Syndrome Quarterly (a multi-disciplinary journal)
Disability Solutions
Down Syndrome Amongst Us
Medical Resources
Medical Descriptions of DS
A description of Down Syndrome characteristics
by Dr. Siegfried M. Pueschel
NDSS Health Guidlines
Health Care Guidelines for People with DS
Spanish Edition of DSMIG Guidelines
Down Syndrome: Health Issues, from Dr. Len Leshin
Dr. Korenberg’s Chromosome 21 Phenotype Mapping Project
Online Mendelian Inheritance in Man (OMIM)
Gene Map of chromosome 21
Risk and Recurrence of Down Syndrome
by Dr. Paul Benke
What is Mosaic Down Syndrome? by Carol Strom
Animations of Meiosis and Fertilization
Center for Motor Behavior in Down Syndrome
Dental Care in Down Syndrome:
A Review of the Literature by Sindoor Desai, DDS
Down Syndrome & Autistic-Spectrum Disorder
Down’s Heart Group
Growth Charts for Children with Down Syndrome
Menstrual Management in Down Syndrome
Hip Instability in Down Syndrome by Kim Voss
Alzheimer’s in DS by Dr. Ira Lott
My Brother and Me: about Down Syndrome and Alzheimer’s
Other Resources for Parents
www.abctutoring.com - Charlotte - Language Stimulation School
Breastfeeding and Down Syndrome,
by the La Leche organization
Communicating Partners, Dr. James McDonald’s program
Diagnosis: Down Syndrome (a collection of stories
for new parents of children with DS)
Down Syndrome - For New Parents
by The Paul Family
Love and Learn Tapes for Teaching Reading
National Down Syndrome Education and Research Institute
Parents’ Resource - For new parents
(by the Edwards Family)
http://www.thinkcollege.net/ College opportunities
Welcome to Holland
by Emily P. Kingsley
Welcoming New Babies
by Pam Wilson
For Your Enjoyment
Artists
Chris Burke Fan Club Website
Sujeet Desai: Pianist Extraordinaire
Michael Jurogue Johnson: a painter and illustrator with DS
Raymond Hu’s Website: his story and paintings
Erik David Behnke: An Alaskan Artist
Jane Cameron, Sunshine Girl
“Beautiful Faces” Calendars and Note Cards
Sign Language Rebus Books for Children with Special Needs
TLC Kids Company: educational materials for children with disabilties
Special Fit Online: Clothes for adults with DS
Time2Read is educational Internet software
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